Sunday, 12 October 2025

Life Down Wattle Lane v2 - A Parkinson's Update

"Do you want to work" was the question that my neurologist asked me at my recent hospital appointment. 

I had been querying with the Doctor as what do other people do for money who have found themselves in my situation with Parkinson's mid life.

The doctor replied "He couldn't answer that, but do you want to work?" 

My answer was and still is "Yes". Not only do I miss the money, the regular money... the pleasurable problem and delimma of having a disposable income... but I miss the social aspect, I miss people.

Me missing people? Yup even I was surprised!

There's only so much satisfaction that can be obtained by talking to the sheep. Even Blake has had enough... the other day, I sat down next to him for a catchup, a chin wag of sorts, and as soon as I was comfortable Blake got up, walked about 5m away, then sat down again! How rude! 

I've tried various attempts at self employment but either my endeavors are not making money or my body, is holding me back due to my Parkinson's. Also due to my Parkinson's being very visible, I cannot hide my condition, making me unemployable.

So; do I want to work? YES
Can I currently work? NO

I need to get on top of my Parkinson's symptoms and issues.

Step 1: Increase medication.

This is my daily pill intake, plus a good amount of dairy probiotics to settle gut and bowel issues.

Step 2: Investigate whether I would be suitable for DBS (deep brain stimulation)

DBS is a surgical procedure for Parkinson's that involves implanting electrodes in the brain to send electrical pulses to manage symptoms like tremor, rigidity, and slowness of movement.

I've been  very resistant to the idea of having mechanical devices implanted in my body... especially the brain! But as time passes, and my condition worsens I am growing very tired of being sick... every bloody day, sick of being sick.

So my resistance to DBS is lessening as my desire to feel normal again increases.

We are at the stage, and I am agreeable to, is to investigate whether I would be even a suitable candidate for DBS surgery. It's not a straight forward process... it will take many months and trips to Auckland.

That's where I am at.

Tired of being sick, but open to new treatments.